Disability Resource: Physical
ALS Association (Lou Gehrig's Disease)
www.als.org/
National health organization dedicated to fight against amyotrphic lateral sclerosis (ALS). Promotes awareness and education.
AIDS
www.aids.gov
U.S. government’s AIDS webpage www.aidsunited.org Dedicated to ending the HIV/AIDS epidemic in America.
American Association of Accupuncture and Oriental Medicine
www.aaaomonline.org
Formed to be the unifying force for American accupuncturists who are committed to high ethical and educational standards, and a well regulated profession to ensure the safety of the public.
American Occupational Therapy Association
www.aota.org
Mission: The AOTA advances the quality, availability, use and support of occupational therapy through standard-setting advocacy, education and research on behalf of its members and the public.
American Physical Therapy Association
www.apta.org
Mission: The APTA will further the profession's role in the prevention, diagnosis and treatment of movement dysfunctions and the enhancement of the physical health and functional abilities of members of the public.
American Paralysis Association (Christopher Reeve Paralysis Foundation)
www.apacure.org
Encourages and supports research to develop effective treatments and a cure for paralysis caused by spinal cord injury and other central nervous system disorders.
American Chiropractic Association
www.acatoday.org
Purpose is to provide leadership in health care and a positive vision for the chiropractic profession and its natural approach to health and wellness.
Amputee Coalition of America
www.amputee-coalition.org
National non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences.
Animal Assistance: Canine Companions for Independence
www.canine.org
California based non-profit that provides highly trained assistance dogs and ongoing support to ensure quality partnerships with offices across the US.
Cancer: American Cancer Society www.cancer.org
National organization offers information, support, education and research for people who have cancers, survivors and the public.
CENTERS FOR INDEPENDENT LIVING (CIL's):
Association of Programs for Rural Independent Living (APRIL)
www.april-rural.org/ National network of programs for non-profit rural CIL programs and individuals concerned with the unique aspects of rural CIL's.
Independent Living Institute
www.independentliving.org
Swedish based organization whose purpose is to promote the opportunities of people with disabilities to gain more personal and political power, self determination, full participation and equality through information, training materials, consultancy and technical assistance. The Institute works in cooperation with other organizations which support these aims at the local, national and international level, including self-help groups in developing countries.
Independent Living Research & Utilization
www.ILRU.org
National center for information, training, research, and technical assistance in Independent Living. Good comprehensive list of all CIL's.
Missouri State IL Council
http://www.mosilc.org/
Develops State Plan for Independent Living (SPIL) for Federal review, also holds periodic statewide meetings to Discuss CIL activity and how disability legislation affects Missouri citizens.
National Council on Independent Living
www.NCIL.org
A membership organization that advances the independent living philosophy and advocates for the human rights of, and services for, people with disabilities to further their full integration and participation in society.
Cerebral Palsy: United Cerebral Palsy
www.ucp.org
Mission is to advance the independence, productivity and full citizenship of people with CP and other disabilities.
Cystic Fibrosis Foundation
www.cff.org
Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the U.S. (70,000 world wide.)
DIABETES
American Diabetes Association
www.diabetes.org
National non-profit health organization providing diabetes research, information and advocacy.
Drug and Alcohol Use with Diabetes
drugabuse.com/guides/substance-abuse-and-diabetes/
Disabled World
www.disabled-world.com
British organization whose goal is to provide the public with Europe’s largest Accessible Accommodation Search Facility information on United Kingdom service providers.
DrugWatch.com
www.drugwatch.com
The site features a comprehensive list of drugs and medications that are currently on the market, or were previously available worldwide; and is dedicated to educating the public about the details of prescription and over-the-counter medications, as well as aiding in the protection of patients and consumers by informing them of any associated side effects.
Ehlers-Danlos National Society
www.ehlers-danlos.com
Ehlers-Danlos Syndrome affects ones connective tissue.
Easter Seal Society
www.easterseals.com/
Provides services to help children and adults with disabilities and/or special needs as well as support to their families.
EPILEPSY
Epilepsy Foundation
www.epilepsy.com
National non-profit who's mission is to work for children and adults affected by seizures through research, education, advocacy and service.
Fibromyalgia
www.fmaware.org
Chronic widespread pain is the major symptom of fibromyalgia.
Gout
www.arthritis.org
Gout is a rheumatic disease resulting from deposition of uric acid crystals in tissues and fluids within the body, a form of inflamatory arthritis.
Heart
American Heart Association
www.americanheart.org National voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.
KIDNEY
National Kidney Foundation
www.kidney.org This national voluntary health organization seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases and increase the availability of all organs for transplantation.
Independent Drivers, LLC
www.drivingevaluation.com Steven Ice, MOT, OTR/L (314) 920-1842 steven@drivingevaluation.com
Klinefelter's Syndrome
www.aaksis.org
The American Association for Klinefelter Syndrome Information and Support is dedicated to enhancing the quality of life for individuals affected by Klinefelter Syndrome, 47XXY, or one of its variants.
KS Support Group Home Page www.klinefeltersyndrome.org
Personal home page with great links.
Lasting Impressions
www.lastingimpressionshomesolutions.com/
Home Remodeling specializing in the "Tub Cut". Becky Bilyeu (314) 837-7722
LIVER
American Liver Foundation
www.liverfoundation.org
National volunteer non-profit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases through research, education and advocacy.
Hepatitis B
www.hepb.org
Nationally recognized non-profit organization dedicated to the cause and cure of chronic Hepatitis B.
Hepatitis C
www.hep-c-alert.org
Known for it's ability to promote public awareness and concern of Hepatitis C Virus (HCV). Most people with HCV don't know they have it (2 out of 100). Great links!
Little People of America
www.lpaonline.org
LUNGS
American Lung Association ALA
www.lung.org
The oldest voluntary health organization in the U.S., ALA fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.
Missouri Assitive Technology Advisory Council
www.at.mo.gov
Missouri Parents Act
www.ptimpact.org
Mission is to help parents of children with disabilities become informed, effective advocates, with a special focus on education.
Multiple Sclerosis (MS)
MS Association of America
mymsaa.org/
Mission is to ease the day-to-day challenges of individuals with MS and their caregivers.
MS Foundation
www.msfocus.org
Mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.
National MS Society
www.nationalmssociety.org
National health organization whose mission is to end the devastating effects of MS. Funds research. Good links.
Muscular Dystrophy Association
www.mdausa.org
Voluntary health agency with a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases. Funds research.
Myasthenia Gravis Foundation
www.myasthenia.org
Volunteer health agency that facilitates the timely diagnosis and optimal care of individuals affected by MG to improve their lives through programs of patient services, public information, medical research, professional education, advocacy, and patient care.
Narcolepsy Network, Inc
www.narcolepsynetwork.org
Our members are people who have narcolepsy (sleep related disorders), their families and friends, and professionals involved in treatment, research and public education regarding narcolepsy.
National Council on Disability
www.ncd.gov
Independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities.
National Organization on Disability
www.nod.org
Promotes the full and equal participation of America's 54 million men, women and children with disabilities in all aspects of life.
National Spinal Cord Injury Association
www.spinalcord.org
Mission is to educate and empower survivors of spinal cord injuries and diseases through our toll-free helpline, nationwide chapters and support groups to achieve and maintain higher levels of independence.
Pet Partners
www.petpartners.org
National Service Dog Center: Provides advocacy on behalf of people with service animals; education & information on training to businesses, health care professionals & the public; referral to service animal training programs; and research assistance.
Post-Polio Health International www.post-polio.org
Mission is to enhance the lives of polio survivors, ventilator users, and others living with physical disabilities by promoting education, networking and advocacy. Includes International Ventilator Users Network (IVUN).
Polio Survivors Association www.polioassociation.org
Dedicated to the task of improving the quality of life for severely disabled polio survivors.
Quad List
www.makoa.org/quadlist.htm
Provides a forum for quadriplegics (tetraplegics) to communicate with others who share the same condition.
Recreation: Recreation Council of Greater St. Louis www.recreationcouncil.org
Non-profit that serves as a "clearinghouse" for information on leisure, recreation and socialization opportunities for individuals with developmental disabilities who reside in the greater St. Louis area.
Special School District
https://www.ssdmo.org/
Since 1957, the Special School District of St. Louis County has provided Special Education Services to students with disabilities. Also, the District operates two technical high schools providing vocational-technical education in more than 30 areas of concentration.
Wheelchair Sports
American Wheelchair Bowling Assoc.
www.awba.org
Non-profit organization, composed of wheelchair bowlers, dedicated to encouraging, developing, and regulating wheelchair bowling and wheelchair bowling leaques.
DASA (Disabled Athlete Sports Association)
www.dasasports.org
National Wheelchair Basketball Assoc.
www.nwba.org Comprised of 181 basketball teams within 22 conferences, consisting of men's, women's, intercollegiate and youth teams throughout the U.S. and Canada.
St. Louis Wheelchair Athletic Association
www.dasasports.org
United States Quad Rugby Association
www.uswra.org
Wheelchair Sports USA www.wasusa.org
Non-profit organization directed by wheelchair athletes themselves, encouraging people with disabilities to become active in wheelchair sporting activities.
World Wheelchair Sports
www.worldwheelchairsports.com/
Programs dedicated to providing recreational fitness experiences and competitive athletic opportunities to people with mobility impairments.
St. Louis Association for Retarded Citizens
www.SLARC.org
Non-profit that provides the highest quality services to help individuals with developmental disabilities (conditions or injuries which occur before age 22 and are permanent in nature) and their families to achieve their goals.
Spina Bifida Association of America
http://spinabifidaassociation.org
National organization that raises awareness of spina bifida and assists individuals who have spina bifida and families via education and services.
Spinal Cord Injury Information Network
www.spinalcord.uab.edu/
Offers education and resources on spinal cord injury.
Spinal Cord Injury Resource Center
http://www.spinalcord.org/
Exhibits a vast amount of information helping to explain basic anatomy, physiology, and the complications resulting from a spinal cord injury.
Spine Health
www.spine-health.com
Goal is to provide people with a comprehensive, highly informative and useful resource for understanding, preventing, and seeking appropriate treatment for back and neck pain and related conditions.
TASH
www.tash.org
An international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.
US Handcycling Federation www.usparacycling.org
Non-profit corporation designed to foster and promote the development of Handcycling in both its recreational and competitive natures.
US Quad Rugby Association
www.quadrugby.com
Formed to help regulate and promote the sport (combination of wheelchair basketball and hockey) on both a national and international level.
US Electric Wheelchair Hockey Assoc.
www.usewha.org
Non-profit corporation dedicated to allowing many participants the opportunity to play electric (power) wheelchair hockey, called PowerHockey™.
United Way
www.unitedway.org
Provides funds to agencies who provide services to people with disabilities as well as others in need throughout the country.
Government Agencies:
Missouri Rehabilitation Services for the Blind
www.dss.mo.gov/fsd/rsb
Provides services to people with varying degrees of visual impairment, ranging from those who cannot read regular print to those who are totally blind.
Veterans Affairs—Vocational Rehabilitation
www.vba.va.gov/bln/vre/index.htm